Weer eens een blog van Dolf. Samenvatting 4 maanden

Acute Leukemie (AML)
De laatste keer dat ik op dit blog heb geschreven is zeker zo’n 4 maanden geleden. 
En wat is er veel gebeurd in die tussentijd. De boodschap dat naast de Myelofibrose zich ook Acute Leukemie (AML) heeft ontwikkeld met de spoedopname de dag er op. Dag erna direct aan de zware chemo. Ik kwam heel beroerd binnen, maar na een week chemo begon ik op te knappen. Het eten ging wel minder en ik ben toen wel een paar kilo afgevallen. Na 4 weken op de afdeling hematologie was de  AML bestreden en mocht ik een weekje naar huis. 

5 mei opnieuw gemeld bij mijn oude vertrouwde hematologie afdeling (wat een fijne artsen en verpleegkundigen werken daar toch) voor een nieuwe spannende periode, de stamceltransplantatie! 
De eerste 10 dagen staan er weer een paar chemo kuren op het programma. Ik was gewaarschuwd voor zware bijwerkingen, maar rolde er goed doorheen. Tja, mijn haar inclusief baard viel uit, maar echt beroerd ben ik niet geweest.
Op 15 mei heb ik de stamcellen gekregen. Een belangrijke dag want vanaf die dag stopt het slopen van mijn beenmerg en start de opbouw. 
En toen….. plotseling zware complicaties o.a. aan hart en longen. Met spoed aan de beademing op de IC. En daar 4 weken liggen zweven op het randje van leven en dood. Midden in de nacht familie opgeroepen etc. De details kunnen jullie in voorgaande blogs lezen. Gelukkig er goed uitgekomen. Na nog een paar weken op de verpleegafdeling te hebben gelegen ben ik nu ruim 4 weken thuis.

Mijn arts is tevreden over de werking van de nieuwe stamcellen. Bij myelofibrose is het beenmerg wat versteend en kost het de nieuwe stamcellen meer moeite om bloed te produceren. Vandaar dat ik iedere 2-3 weken nog 2 zakken bloed krijg. 
Vandaag weer het wekelijkse controle bezoek. Hb 4,9. Dus gezakt onder de 5 en gelukkig hebben we al een afspraak voor een bloedtransfusie staan in de middag. 

Revalideren met een rollatorProbleem wat nog niet is opgelost is het gebrek aan spierkracht, en dan vooral in mijn benen. Ik kan nog maar een paar stappen lopen achter de rollator. Veroorzaakt doordat ik 4 maanden op bed heb gelegen. Twee maal in de week proberen we dit met fysiotherapie te verbeteren maar het gaat niet hard vooruit. Gelukkig krijgen we van alle experts te horen dat het goed komt, maar dat het tijd nodig heeft. 6,5 week IC en 4 maanden op bed “repareer” je niet zomaar…

Al 3 jaar weet ik dat ik ziek ben. We hebben veel meegemaakt. Dit blog is een prima middel gebleken om met alle volgers onze belevenissen te delen, en om geïnteresseerden op de hoogte  te houden. Daarnaast hebben we in die 3 jaar veel steun ondervonden in de vorm van kado’s, telefoontjes, bezoeken, gesprekjes, berichten en kaarten. Daarvoor namens mij en mijn hele gezin 

164 gedachten over “Weer eens een blog van Dolf. Samenvatting 4 maanden

  1. bronce / Existe uma teoria que qto maior a abundância, maior um animal será. Há o caso do um homo de uma tal de ilha das flores, que por ser uma ilha, era mais pequena, menos abundância, tornou-se menor.Outra teoria diz que noutros tempos na terra havia uma maior densidade de oxigénio, isso provocaria os animais maiores…Gostei deste comentário ou não: 6

  2. ان شاالله که در کارت موفق باشی.ان شاالله که روزی بیاد که از عکاس منجی باشی.پیوست:سلامتی امام خامنه ای،سید خراسانی عزیزمان صلوات

  3. They could have solved the “obvious CGI” issue by making this an entirely animated movie. Of course, then all the animals would have to talk. But hey, Ray Romano, Eddie Murphy, Adam Sandler and Robin Williams could use the work. And I’m visualizing a grand musical number on that raft, with dancing dolphins & flying fish, rapping lobsters, and a singing manatee voiced by Justin Beiber (or perhaps…Cristina Aguilera–zing!).

  4. come senza convenienza?cosa ”è successo”? 10 anni fa davano quasi un milione delle vecchie lire x seminare o fare finta in un ettaro ..e come li davano volentieri.. forse pensavano al paesaggio i primi potenti dell’europa?..ora devono serbarseli x loro e non li danno più..oppure li danno a chi vogliono loro???

  5. thanks for your help with my blog questions, i love your pictures, is it an option to share them?, are the boating pictures from one city or various? congrats on being interviewed by a magazine, i do free lance research for people who need prompts for their articles, nice to meet you, focused fox.

  6. Deberías tener un eslogan así:”En piedritas, con lanitas, tintas chinas, acuarelas, acrílicos, sellitos, bordados y tejidos…Everythig GENINNE!”.Verdad que si?..Espero no se me haya pasado por alto algo.Eres asombrosa!!! Te admiro mucho!Ale

  7. McCann's Manchester have at least a couple of things in D&AD almost every year, Big and TBWA Manchester also feature a lot in other creative award shows. Also I've noticed whenever British Airways is mentioned in Campaign it's an ad by BJL that's shown (Big Ben Airport thing) rather than anything by the lead agency, which correct me if I'm wrong is BBH.

  8. Juste pour info, mes parents sont musulmans, ils trouvent ça abominable de ne pas endormir les animaux avant de les tuer. Et pour eux, même faire couler le sang après endormissement est considéré comme halal.Question: est-ce qu’un vampire peut mordre le cou de quelqu’un ayant mangé de la viande à l’ail?

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  10. PauerbalansologoDato che il mio compare, il prof. De Drakkaris si è specializzato in omeopatia, io mi sono cintura nera di Pauer Balans, il braccialetto magico che ti cura da tutto. Soprattutto dalla pesantezza del portafogli!Alleggerire il mio portafoglio? Alleggerire il mio portafoglio? Parli con l'unica donna che accompagna un uomo a fare spese e torna alla base senza aver comperato nulla per sé (e che se trova qualche spicciolo in terra ritorna a casa possedendo un più soldi di quanti ne avesse alla partenza).

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  18. lol your reviews are awesome! I love this game, possible one of the best rpgs i’ve ever played. And Steam now only wants 39.99 for it! I totally agree with you on this review Angry Joe.My only gripe is the not being able to drink potions on the fly anymore, that is totally gay. I’m hoping that a dedicated fan will make a mod to include that into the game in the future or maybe the company will patch it ( doubtful).

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  32. I guess on the radio side tonight Stu Lance fills in for mychal thompson who’s attending his son’s graduation. I understand Beyonce approves (me too!).Can’t wait for gametime. Keep it close and watch the thuggets implode late (if Lakers can hold off that 1st half charge – yikes).Pau, do your work tonight, and don’t get discouraged if the whistles aren’t blowing, stay after it.

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