Dag 11/12/13/14 Hematologie

Heel veel nieuws, dus toch maar wat eerder info gepost  😉

De wijde wereld in

Dolf’s wereld wordt nu een klein stukje groter. Met de sta-lift wordt hij in de rolstoel geholpen. We maken nu echt een ommetje: naar de hoofdingang, met de lift naar beneden, naar de tuin naast het terras bij het restaurant. Dolf houdt het zitten al drie kwartier vol.

Gelukkig is het mooi weer, dus kunnen we fijn naar buiten. Wel moeten we erg opletten. Na een stamceltransplantatie mag je niet meer onbeschermd in de zon (dus huid bedekken of insmeren met zonnebrandmiddel met een hoge beschermingsfactor). De zon kan namelijk omgekeerde afstoting veroorzaken. De nieuwe (donor-) cellen kunnen doordat ze door de zon geprikkeld worden, de huid aanvallen. Daar zitten we natuurlijk niet op te wachten.

Als je in een rolstoel zit met een (sondevoeding) slangetje in je neus, zonder dat er een sondevoeding-zak aanhangt, kijken de mensen je heel onderzoekend aan. Een bezienswaardigheid ….

Revalidatie-arts

Weer zijn Dolf’s spieren en reflexen gecontroleerd. Door training moet de motoriek in orde kunnen komen. Momenteel onderzoekt de revalidatie-arts naar welk revalidatie-centrum Dolf kan gaan. Weddesteijn in Woerden zou misschien mogelijk zijn, eventueel Maria-oord (Vinkeveen).


Fysiotherapie

Het in de (rol)stoel zitten is al een gedeelte van het trainingsprogramma. Daarnaast is nu ook een “loopbrug” ingezet. Denk hierbij aan turnen: in dit geval zijn de leggers waarop je leunt, slechts ongeveer 1,5 meter lang. Ze zijn in hoogte verstelbaar. Met de motiverende hulp van de fysiotherapeut is het Dolf gelukt zelf te gaan staan!!! Zittend op de rand van het bed, met beide handen een legger vastpakken en zich overeind duwen. Het lukte hem zijn voet een stapje vooruit te zetten en een stapje terug…

De eerste stap is gezet!!!

Dit zal zeker spierpijn opleveren, maar daar geven ze goede pijnstilling voor.

Hematoloog:

In het stamceltransplantatie-traject wordt 2 of 3x bloed afgenomen om te bepalen, hoe de verhouding donor-cellen – eigen cellen is (witte bloedlichaampjes).
Als er meer dan 95% donorcellen zijn, dan is het een goede uitslag.
Bij de 1e test enige tijd terug, was de uitslag 98%, prima dus! Binnenkort volgt de uitslag van de 2e test.
Als de uitslag dan weer prima is, hoeft de test geen derde keer gedaan te worden.
 
Bloedwaardes 
15 juli

Rode bloedlichaampjes 5,2
Witte bloedlichaampjes 2,3  (Jammer, toch weer minder weerstand dan de afgelopen periode.)
Bloedplaatjes 88

18 juli: rode gedaald tot 4.6, bloedtransfusie (2 zakjes) gegeven.

Diëtist

Op de dag wordt de sondevoeding stopgezet, zodat Dolf weer trek krijgt. Bij sondevoeding heb je geen hongergevoel meer, omdat er continu voedsel wordt gegeven. Daarnaast moet hij voldoende drinken, en wel een liter per etmaal. De sondevoeding wordt alleen ’s nachts gegeven (met een hogere inloop-snelheid). 
Het slikken gaat zo goed, dat Dolf nu weer drinken mag en gemalen voedsel mag eten!
Dolf is wel vaak misselijk, waarvoor hij medicijnen krijgt. Het wennen aan gewoon eten en drinken is nog niet zo eenvoudig. 

Woensdag heeft hij wel weer een colaatje gedronken!! Alles kan een mens gelukkig maken …

Wondje tracheo stoma


De eerste dagen na het verwijderen van de canule, moest Dolf, tijdens het praten, steeds op het verband duwen om het wondje dicht te drukken om ontsnappen van lucht door het wondje te voorkomen. Dat vertraagt namelijk het dichtgroeien. Je hoorde de lucht ook echt sissen, als Dolf het niet dichtdrukte. Hij vond dit heel vermoeiend. Na drie dagen hoorde je de lucht niet meer en het sneetje was nog maar zo groot als een stukje macaroni.

Verhuizing binnen het UMC

De televisie hield er mee op. Heel snel kwam de KPN-monteur. Een kabel-probleem, waarvoor het plafond open moet.

Complimenten voor de verpleging: binnen een uur was de verhuizing naar een andere kamer (nummer 11) geregeld! Want hoe kom je als patiënt de (lange) dag door zonder “bewegende beelden”?! 

 

221 gedachten over “Dag 11/12/13/14 Hematologie

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  7. that ‘innocent’ Americans had nothing to fear about this program. Who is going to define ‘innocent’?Several years ago Rumsfeld and the administration was suing Greenpeace based on some law from, I think, the early 1800s, that had been passed because of pirate ships on the coast stopping and stealing from other ships. The action by the government was largely seen as trying to backrupt Greenpeace, whom Rumsfield called a terrorist group.So, if the Bush administration decides someone is not an ‘innocent’ American, how is this phone database going to be used?

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  11. dit :Un point important qui a été souligné et qui mérite d’être répéter est que l’argent dépensée dans le secteur privé le sera toujours mieux fait que l’argent dépensée par le secteur public. Ainsi, il est un devoir moral de ne pas payer d’impôt si notre but est de maximiser les bienfaits économiques et sociaux faits avec nos ressources acquises.En effet.

  12. no to Joe and that is that (could you imagine John Stewart having a similiar veto over the Democrat pick?). His Rove directed campaign will never cross Rush. I saw someone mention that this is just a way to make Mormon Mitt more acceptable to the hard core Dobson crowd. Sounds like that could be the reason to me.

  13. : Vous semblez ignorer que « The Voice » en France est la « copie » de « The Voice » aux Etats-Unis.Un petit rappel ne fait pas de mal : Les chaînes de télévision achètent des droits pour diffuser les mêmes émissions partout dans le monde, vous pouvez vérifier sur Youtube.

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  15. Sur Godard, bien que ce ne soit pas le sujet de votre article PA, à voir absolument le documentaire vidéo sur le site de Arte, son oeuvre vendue à la Gaumont et lui dans une sacrée panade !C’est scandaleux au regard du trait de génie, conscient/pas-conscient, qu’il a insufflé au cinéma français ..

  16. Acabo de dejar un comentario a Trying. También vale para aquí: no sé si me atreveré. A mis pecados no les gusta nada salir de paseo. Pero intentaré un pacto…Puedo adelantar uno: me confieso culpable de tener aquí encima de la mesa, ante mis ojos, una cajetilla de Celtas que no termino de enviar…

  17. In one report, it said the missile was launched from ‘north of Moscow’ and came down ‘in an unihabited area north of Japan’.Hopefully they remember some of us do actually live here.

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  27. Concordo em gênero número e grau. Ou "The Glen"… ou tbm Indianapolis (se bem q Bernie ñ gosta da idéia), já q msm sendo meio improvisado foi uma das melhores pistas dos 2000's.

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  34. WORD TOBBE! AMEN.Läst ekonomi på universitetsnivå i snart 4 år och jag kan i stort sett inte se på vilket sätt det skulle skada IFK Göteborgs varumärke?Absolut vokda negativt laddat? Fan, kom in i matchen..Friska millar mot nya titlar och nya storhetstider. Så hade jag sett på saken.

  35. Thanks so much, Susan! You have basically summed up our walk pretty perfectly. We’ve loved hearing so many people’s incredible stories and we are looking forward to sharing future updates as well. Thanks again for the kind words!

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  37. GZ is Guangzhou.Unfortunately, we do not get RT here. Although there is an interesting dramatic series that has Chinese and Russian actors. What they do is film the scenes and then dub in the voice acting. Thus, this series can exist in Russia and China. It’s really a bit brilliant.

  38. Boleh juga murid-murid sekolah melakukan tarian ini untuk merengang otot sebelum pembelajaran sekolah kerana ia tarian ceria dan menghibur. Permulaan yang baik untuk pembelajaran di kelas dengan senyuman dan ceria.

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  40. HeheSå søtt.Spørsmål: hvor har dere fått tak i den vesle tigeren.. boka? jeg er på konstant jakt etter mine egene barndoms "helter" og synes historiene om de to som skulle til panama og spise bananer var kjempespennende.Dere har i allefall en hyggelig blogg!

  41. there are two other factors, directly dependent on temperature: increased rate of diffusion of water molecules (out of leaf surfaces), and increased rate of evaporation. The latter would decrease the recharge of aquifers, and reduce the length of the rain-fed growing season in regions with a pronounced wet season – dry season climate, because less water would percolate into soils.So I expect there to be a super-linear effect on plant stress from the expected temperature and relative humidity changes.

  42. the murder was a head shot several times over (very unlikely for a mugging/gang violence)’Uh, if they’d find it edifying, I’d be happy to email them the photo I took with my phone of the crack dealer dead one block from one of my offices about a year ago in a rougher area Dallas, and in broad daylight, at that. Mebbe it was an accident that all those shots found their way into his person from the neck up, but somehow, I doubt.Phlemgy! You just thought that was a random crack dealer. It was another target of the all powerful .gov!

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  47. What a fab interview, Jane and Sarah. I’m a big fan of Help, My House Is Falling Down!I like the advice that you’ll only ever regret things you don’t do. That’s so true, and very inspiring to hear from someone who has clearly lived from that place.Thank you!

  48. Far from devastating the economy many of our social and economic problems would be greatly reduced if we closed our border to illegal traffic:- school overcrowding- low test scores- gang violence- skyrocketing medical costs- jail overcrowding- affordable housing shortages- stolen vehicles- illegal drugsAnd how many weeks of demonstrations will it take before it’s clear to everyone that most of the demonstrators don’t have jobs?

  49. I too am conflicted about whether to attend the March for Equal Marriage or not. I have decided to attend. I’m coming from California where you would think that marriage equality would be a no-brainer. Instead, we have right-wing funded referenda that have eliminated the chance for me to marry. I will be at the march. My best friend from college/high school (who is straight) will be there. My two kids are sending me off with hugs and kisses. All of this is important. Maine’s battle, ours in California, and our national battle for marriage equality, health care/insurance reform, and rescinding “Don’t ask, don’t tell”.

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  51. That's such a cool story Sharon! I love NY as well – I have very fond memories of my adventures there. Wouldn't it be nice if we had the "story" of everything we find in brocantes or antique stores? Who bought it first, why, was it a gift? It would be something to pass on.

  52. Hi Nina. Got back from Burma. I was in Rangoon as well as in Kachin state in the north. I loved Burma, most especially the people. They’re very sincere and when you talk to them parang walang barriers (unlike when you speak with most people of other nationalities) Thanks for recommending the guesthouse. The people at Ocean Pearl were very helpful. Medyo ma-hassle going to Burma (with the money and transpo and all), but I was expecting it, pero it’s all worth it, especially if you’ve made friends there. I’m definitely going back.

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  56. ………………………………Sigh – no Anon – We all agree that firing rockets at people isn’t very nice, but you can’t pretend that there are some long standing issues in the region, so don’t play the victim here – and while we are quoting UN resolutions, 242 jumps to mind doesn’t it – but that hasn’t stopped Israel running the West bank as a prison has it?

  57. I also agree that it is far more likely that China sent Hui, who are essentially ethnic Han of the Muslim faith, despite being classified as their own ethnic group under current PRC law. There are roughly the same number of Hui as Uyghur in China (~10 million) but unlike the Uyghur, they aren’t particularly distrusted by the government as the Hui have been generally strong supporters of the Chinese state for quite a while, with there even being several notable Hui generals in Qing, ROC and PRC armies.

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